ADAO Action Points!
SAVE THE DATE!
Asbestos Awareness Day
April 1st
Visit the ADAO eLibrary Details »
Read Reflections
Watch "Asbestos Kills(c)" Slideshow »
Wear ADAO Wristbands...
Make your Voice Heard...
Four direct action steps to make your voice heard today!:
1.
Write your legislator:
The Senate »
The Congress »2.
ADAO and
Public Citizen
are looking for specific victims of asbestos-related diseases...
Read More »
- or email
"Victims"
at ADAO;
3.
Sign ADAO online
"Asbestos Ban" petition... ».
Support ADAO... Donate!
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Care-Giver Support
The ADAO Care-Giver Support Team
— Email our team: "Care-Giver Support"
ADAO has provided support to countless victims of malignant and nonmalignant asbestos related diseases during these past months. To many victims and their families, ADAO has become their lifeline. My sincere thanks to our tireless volunteers who are sharing one of the greatest gifts of all, time and hope to others. Please email Shelly and/or Nancy if you need or would like to offer caregiver support.
From Shelly, ADAO Care-Giver Support Team
My name is Shelly. My husband was diagnosed with peritoneal mesothelioma in July of 1998. Thankfully, with aggressive treatment he is doing well. However, when he was first diagnosed, there was a whirlwind of decisions to be made about a disease we knew nothing about.
My role as a caregiver was never an easy one. We had a 12-year-old daughter that we left in Missouri as we sought treatment in NY. I always felt guilty when I wasn't there for her and exhausted being the only one in NY to take care of Craig. Feelings of anger, loneliness, guilt and fear were always weighing in on my mind.
Now, I try to be a link of hope for men and women who are dealing with these feelings of desperation. Just hearing a voice on the other end of the phone, it sometimes all some needs to get through another day.
From Nancy, ADAO Care-Giver Support Team
My name is Nancy and I am the caregiver of my husband Roy who has pleural mesothelioma. He was diagnosed by accident in July, 2003, was given the course of Alimta/cisplastin as compassionate care and operated with partial removal of his right lung with scraping of the diaphragm and esophagus.
Chemo of gemzar/carboplatin was administered in Feb-April of 2004. He had been NED until April of this year when the CT scan showed some changes and a needle biopsy showed meso in the chest wall. Presently we are looking into treatment possibilities to slow the growth. We live in Northern Michigan and have an oncologist who is willing to do whatever we suggest.
During this up and down two-year period there have been times when I felt that we were definitely alone in our struggle and desperately in need of someone to talk about the disease. The ACOR site has helped, but I still feel there needs to be a place where caregivers have a place to share ideas, cry on someone shoulder and just vent. Meso is such a terrible disease and is/was so preventable. Another thought: meso is a "we" disease. It takes over your life. As Dr. Pass told me following Roy's surgery, "Meso controls your life from now on".
June Breit, ADAO Patient Liaison
June Breit, ADAO Patient Liaison and mesothelioma survivor, has 30 years of nursing experience and shares hope, resources, and support to all patients with any malignant or nonmalignant asbestos related diseases.
Contact ADAO
Asbestos Disease Awareness Organization
1525 Aviation Boulevard, Suite 318
Redondo Beach, California 90278
info@AsbestosDiseaseAwareness.org
www.AsbestosDiseaseAwareness.org