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What About My Health? By Arthur L. Frank, PhD, MD

Rare diseases are often difficult to diagnose. In addition, treatment information can be difficult to find and experts with experience treating such diseases are typically rare. Various treatment options exist for asbestos-related diseases, patients respond differently to treatments, and personal preferences should also be taken into account. The information available can be extensive, but some basic guidelines may assist patients in their search for health help. Friends can be a great resource to find online resources, connect you with others with the same diagnosis, or help vet doctors and treatment facilities. You may want to consider asking questions like, “What would you have done differently given the choice?” Armed with these resources, you and your family will be able to make better decisions based on your personal situation. Remember, don’t be afraid to ask for help.

*Arthur L. Frank, PhD, MD is co-chair of ADAO’s Science Advisory Board. He is Professor of Public Health and Chair of the Department of Environmental and Occupational Health at the Drexel University School of Public Health in Philadelphia.